Handouts to families
Natalia’s family is fundraising to build a padded sensory room.
A fundraising campaign for children born with a rare disease that causes their bones to become brittle has reached its £10,000 target.
Natalia was born with osteogenesis imperfecta in May 2022. In September she broke her femur and required surgery.
Funds raised through an online campaign for two-year-olds in Polegate, East Sussex will be used to fund a sensory room with soft play padding.
Her mother Nicole said: “This means our little girl will have her own magical world of play.”
Natalia’s father Peter said: “It means more than words can express.
“It means our little girl will be able to play like any other child.”
The family said they were told by Great Ormond Street Hospital that Natalia was the only person in the world with her special condition.
Natalia’s parents say the donation means “more than words can express”
It took two and a half years to get permission and a grant to add on to her family home to meet her needs.
The total cost came to £140,000.
A person has donated £6,000 to the Padded Sensory Playroom Fund.
Nicole said, “I would love to find that woman and thank her from the bottom of my heart.”
